I have been doing some research today on Hydrotherma ablation.(after canceling my hysterectomy yesterday….due to complications and being scared to death) It seems that it is only helpful for heavy bleeding. I don’t have heavy bleeding just very painful. I have endo and possibly adenomyosis. The dr also told me that it would not help for the pain. My thought on this is if I don’t have periods anymore then I won’t have nearly the pain anymore…Right?? I am confused as to why it would not help with the pain. If you don’t have a period anymore then I would think that the endo would not act up during your period time??? Am I right about that or would the hormones still cause the endo to act up??
Is there any other treatments that are effective against endo??? I know about many of the medicines and have tried most of them. I was also thinking about an IUD. Has anyone had success with that??
Any other suggestions would be helpful…. Thanks.
#1 by Vicky - April 17th, 2009 at 16:02
Jen,
If I remember your doctor thinks you have adenomyosis and endo?
The first is basically endo inside your uterus which makes it thicken and go spongy. The second will probably be found anywhere in your pelvic area, it can be on your bowel, bladder, fallopian tubes, ovaries…in fact anywhere in your pelvis. I even had it growing on my pelvic nerve.
The reason you would still get pain is because endo is basically the same tissue you find in the womb so each month when you have your period an ablation would not stop the tissue outside of the womb from bleeding)this tissue acts the same way and bleeds. There is nowhere for it to go and that is when pain developes and scar tissue which causes adhesions to other pelvic organs. This also causes a lot of the pain with sufferers of endo.
If I could have used an alternative to a hyst I would have, my endo was severe with lots of scar tissue and adhesions to other pelvic organs. In my case it was my only option. Usually if it is not too severe they can keep doing laparoscopic excisions of the endo but this obviously involves going in and out of hospital to have this done.
I think you really need to talk some more with your surgeon and get him to tell you what stage this is at and if you need a hyst at this point or if excision is an option.
Please let us know how you are getting on with this. My heart goes out to you I know how much pain this causes and also what a big decision this is.